Forty of the 208 questionnaires were returned by the postal service as undeliverable (green) and with no forwarding address. Of the remaining 168 questionnaires, 114 (68%) were completed and returned (blue). 54 were apparently received and not returned (yellow).
Figure 3 - right.
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Of the 114 responding, 59 patients (52%) were satisfied with the injections. (blue)
Figure 4 - right
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Satisfied patients included groups who could receive treatment closer to home (blue), died satisfied of unrelated causes (brown), just had an interval between injections of more than a year (white), and felt that their disease improved (light aqua).
55 patients had discontinued treatment for reasons of dissatisfaction. 48 have not resumed treatment (orange). 7 who expressed dissatisfaction with the treatments have since come in for further injections in the ensuing 18 months. (light blue)
Figure 5 - right
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TABLE 1
SATISFIED (58% of respondents; by extrapolation: 223(continuing treatment) + 58% of 208(discontinuing treatment at our institution) (121)= 344= 81% of 431)
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Continuing Botox closer to home | 25 |
| Enough better to discontinue Botox | 18 |
| "Normal" | 3 |
| Satisfied, but getting Botox > 1 yr apart | 6 |
| Happy with Botox up to time of death | 7 |
| Total | 59 |
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TABLE 2
DISSATISFIED (42%)
| Not enough benefit | 23 |
| Too expensive | 17 |
| No benefit, or worse after Botox | 18 (self-contradictory comments of 5 of these suggested in fact they were better but frustrated) |
| Distance too far | 14 |
| Side effects prolonged and/or benefit short | 11 |
| Painful/unpleasant | 9 |
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